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There should be an explicit agreement between ICH researchers and community and university partners with respect to ownership of the research data. The nature of the agreement will be determined on a project-by-project basis, as the community needs/requirements may differ (i.e. a school, a department of health and a coalition may require different agreements). This agreement should be made prior to the onset of the project and revisited during the project with the project-specific working group.
Jointly with community partners, the Executive Director of ICH will review any and all requests for use of ICH data and access to ICH data by members of a research team, outside agency, or other persons (e.g. for dissertations, presentations, etc). For situations in which ICH has access to data that is owned by another source (i.e. a school or health department), ICH will defer to data access policies documented previously in a memorandum of agreement.
For ICH data, any person who gains permission to use any portion of a data set and conducts statistical analyses independent of the work of the ICH staff must provide written documentation of study design and analysis plans (including statistical programs used, creation of new variables, data output, etc) to the Senior Epidemiologist on a mutually agreed to schedule, usually within 1 month of the activities conducted using the data. In circumstances where ICH has access to the data of another organization, ICH must consult with that organization in order to determine who will supervise data analysis.
When appropriate and feasible, analytic files of ICH data will be made available for public use. Analytic files will have subject identifiers removed, to ensure confidentiality. Suppression of cell sizes < 5 in reporting will be considered the general rule. However, any agreement requiring larger numbers for suppression will supercede this rule.
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